That's a good question. I'm not sure what is the answer. I'll do some research in Google and get back to you if I discover an good answer. You should email the people at Medifast as they probably can answer it..
I get so tired of people acting like they understand and want you to stay positive all the time.. UGh easier said than done when you are in horrible pain or.
To the bathroom.. my hubby and his family are clueless too att imes and it can be frustrating.....
I completely agree...I know how you feel all too well...I have other halfs family ooooh ya musnt eat that, oh no dont eat this...im like OK the specialist nurse told me I can eat what I like...its trial and error you will find out over time what you can and cant eat...and so far...*touch wood* only thing that has caused me prbs is drinking tea...but at the mo I can even drink that so I'm doing well...unless it's because I have the colostomy thats why I'm not suffering I dunno!.
You do what YOU need to do, you can listen to advice but you dont have to take it!.
I have had a lot of good advice given on here and it's been really usefull, especailly from nikanika2....
Take care :D..
The things that your husband and his family have said to you are the same things that have been said to me. Initially, I would find them frustrating, but now not so much..
I have realized that I have to accept that people who do not have a chronic disease cannot truly understand how I feel; therefore they can only sympathize so much..
I understand your frustrations, but don't let that get you down OR stop you from doing your.
About this disease! I also suggest (this is what I have done) that when you need to vent or complain or just say something about your day, you do it here. I know that people here will always understand me and I always get the support that I need! I try to limit my convo with family and friends as much as possible now...at this point, people actually think that what I have has gone awaythey still don't understand that this is a chronic condition!..
All I can say is that I completely understand what you are saying. I tried to respond to this post four times already and it just got my dander up. People can be so clueless and thoughtless at times...
I agree with what is being said here... you need to take charge of this disease! you need to educate yourself and ignore 90% of what your told by others!!!.
It is frustrating. but I DO NOT agree with your nurse telling you you can eat what ever you like!!!.
Best of luck to you!!!..
That suxs but he is most likely only tryin to help everyone in life has some kinda struggle and things they have to deal with you just need to not let the crohns rule your life. it's very liveable and many people go into remission and have times with no problems dont think the worse take a day at a time...
Good for you. Study lots. Being prepared is the best thing. I know myself with all my sergeries and trouble preparing my mind was the best way to help myself. People don't want to hear it because it scares them. They don't understand you need to talk about it, study it, know it.
Being ill is a lonely thing. I will listen anytime you need. I got colon cancer and because I didn't sit back on "I'll be fine" I am alive today. I have crohns but before they found the crohns they found over200 cancerous and precancerous polyps. Keep watching it..
Evry day I learn something new about this disease and I am sure I will learn more in the years to come. you have to keep up with new meds , new ways of dealing, and what if they come up with a cure and you have stopped looking. you may miss it due to what some one else says. I am also telling my hubby about new things I learn and even if he does not care he does not act like he doesn't. I had crohns for five years not knowing what I had and had no computer to look it up. so I am very involved into finding even the new med or therapy that could help me.
I went to a semenar in georgia and they paid me to tell them about what is going on with my illness and what I would ecscept from a new med. and I will no longer live in the dark like I did in that five years again. and now I know what I have had in the last twelve years. so good luck. I too have family that just don't care and I no longer speek to them. it is best for my health...
And telling me some herb will solve all my problems. Or look at me like I am crazy. Like my husbands family. They say stuff like this is all in your mind or you take too many medicines. Even my husband can be dumb. I was telling him that since I have had the same deep ulcer for years, my risk of getting cancer there goes way up.
I said, I WAS JUST STATING A MEDICAL FACT THAT IS THE TRUTH AND I AM NOT GOING TO SIT AND PRETEND THERE IS NOT A RISK. At least if I have a chnage in symptoms I will be aware of what things to look out for. He said you need to stop.
That stuff off the internet. I HATE WHEN PEOPLE ARE STUPID!..
Also just a another tiny word of advice tell your hubbies familythat I don't take enough meds to deal with you. or maybe that is why I do take alot of meds because of you.lol stress does make your illness worse...
I can honestly say that I have never had this problem, my family has always bent over backwards to help, trying to buy me things that I could eat, and my father bless his heart read about it and ask doctors as to what way foods should be prepared and so on, I have had a world of support...
Some people just won't get it. :(.
Even though I am quite the alternative medication pusher.... I am always really cautious about what I take. The only stuff I give advice about is stuff that I have done for myself. I really hate certain companys that tell you that their herb is the cure all and all your symptoms will magically go away. I have been off my meds for almost 2 years and sometimes have to get back on them every 5 months are so because of a flare up.... and even when I am completly feeling GOOD there is sometimes a dull pain in my intestines if I push there hard.
And you have every right to look at this honestly. Some people confuse honesty with pessimistic thinking. We read the side effects... we look at the data, it's scary shit. I don't want to go blind (rare thing with UC), or have my hair fall out ( side effect of med), or a lump on my back ( side effect of.
) and various other things I read about. Colon cancer is scary. Thats probably one of the biggest reasons why I try so hard to help myself by taking other things...
This is exactly why I decided to joing this website. Sometimes when I have a flare up (or am taking pred. and am extremely emotional) I get kind of depressed about having the disease. When I got to my boyfriend of 1 year (who has never been around anyone with crohn's) for a little bit of comfort I get " well your going to have it your whole life so you just have to deal with it" or "Don't be so negative about it. Everyone has their own stuff to deal with in life." I get so upset by his answer. It's like how am I supposed to suck it up when every thing I put into my stomach reeks havoc on me? Or better yet how am I supposed to say no to foods that I love, but make me sick during a flare up, when he's eating them right in front of me? (like getting popcorn at the movies).
About. He related my having crohn's to him being bipolar. Grrr...